Medical care for adults with developmental disabilities

"Reader[s] will find something about almost everything having to do with caring for the disabled….The editors and contributors continue to define the field."


Dr. Rubin is originally from South Africa, where he was sensitized to inequity and injustice. These elements have shaped and guided his personal and professional life. After graduation from the University of Witwatersrand Medical School in Johannesburg, South Africa, he trained in pediatrics, taking care of many infants and children with potentially preventable conditions. He came to the United States in 1976 to specialize in neonatalogy and in care of children with disabilities at Case Western Reserve University in Cleveland, Ohio. He joined the faculty at Case Western until 1980, when he migrated to Boston to work with Allen C. Crocker at Children's Hospital Boston and Harvard Medical School. There, he actively participated in clinical and academic programs and provided outreach consultation to a number of regional schools and centers serving children and adults with developmental disabilities. Dr. Rubin moved to Atlanta, Georgia, in 1994 to help develop clinical and academic programs at the Marcus Institute and Emory University. In 1998, he developed interdisciplinary clinical programs in cerebral palsy and autism for children with sickle cell disease who have had strokes at the Hughes Spalding Children's Hospital in downtown Atlanta. Since 1998, he has been part of the Southeast Pediatric Environmental Health Specialty Unit at Emory University. In 1999, he began to work at TEAM Centers in Chattanooga, Tennessee. In May 2004, Dr. Rubin founded the Institute for the Study of Disadvantage and Disability, which is dedicated to improving awareness and understanding of the relationship between social and economic disadvantage and disabilities. In September 2004, he left Emory University and the Marcus Institute and joined the Morehouse School of Medicine to work more closely in academic and clinical programs relating to community and public health to help reduce health disparities for children and adults with developmental disabilities as well as those who live in circumstances of social and economic disadvantage.

Allen C. Crocker, M.D., was born and lived thereafter in Boston. He was educated at Massachusetts Institute of Technology and Harvard Medical School (1948). His houseofficership was at Children's Hospital Boston, with postwar military service in Germany. Dr. Crocker then began a long career at Children's Hospital Boston, which became the principal site of his vocation. There, he learned about development, both child and personal. He spent fifteen years with Sidney Farber, involved especially with children who had inborn errors of metabolism. Since 1967, he directed a series of Maternal and Child Health Bureau training programs relating to mental retardation and developmental disabilities, including much clinical energy. He had great joy in community programs for children and parents, and with a wide variety of advocacy groups. He was unaccountably fortunate in professional opportunities.

Matthew P. Janicki, Ph.D., is a research associate professor of human development at the Institute of Disability and Human Development at the University of Illinois at Chicago and serves as Director for Technical Assistance at the Rehabilitation Research and Training Center in Aging with Mental Retardation at that university. He also is a research professor and co-director at the Centre on Intellectual Disabilities at the University at Albany (New York). Formerly, he was Director for Aging and Special Populations at the New York State Office of Mental Retardation and Developmental Disabilities. Dr. Janicki was a Joseph P. Kennedy, Jr. Foundation public policy leadership fellow, spending a sabbatical year at the National Institute on Aging and the U.S. Senate. He was responsible for founding several aging and intellectual disabilities interest groups within American and international intellectual and gerontological professional societies. He is the author of numerous books and articles in the areas of aging, dementia, public policy, and rehabilitation with regard to people with intellectual and developmental disabilities and has lectured and provided training in aging and intellectual disabilities around the world. Dr. Janicki is a fellow of the American Psychological Association, the Gerontological Society of America, and the International Association for the Scientific Study of Intellectual Disabilities.

Donald Lollar, Ed.D., is Director of the Oregon Institute on Disability & Development at Oregon Health & Science University (OHSU)'s Child Development and Rehabilitation Center. Prior to his position at OHSU, Dr. Lollar was Senior Research Scientist, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention (CDC), Atlanta, Georgia. Dr. Lollar received his doctorate in rehabilitation counseling from Indiana University in 1971. After 25 years of clinical practice, Dr. Lollar spent 13 years at CDC working on public health science and programs to improve the health and well-being of people with disabilities, with special emphasis on children, adolescents, and their families. He has published widely in the areas of disability, public health, and youth with disabilities. Dr. Lollar has also been a member of the international task force that developed the International Classification of Function, Disability and Health–Children and Youth Version (ICF-CY) for the World Health Organization.

Sarah Winter, M.D.
Associate Professor
University of Utah
Salt Lake City, Utah

Dr. Wolraich is Chief of the Section of Developmental and Behavioral Pediatrics at the University of Oklahoma Health Sciences Center. He received his M.D. from the State University of New York Upstate Medical Center in Syracuse. Dr. Wolraich completed a p ediatric residency between Upstate Medical Center and the University Oklahoma Health Sciences and completed a fellowship in developmental pediatrics at the University of Oregon Health Sciences Center. Dr. Wolraich has spent more than 30 years in research and clinical service related to attentiondeficit/ hyperactivity disorder (ADHD) and is a 2003 inductee in the Children and Adults with ADHD (CHADD) Hall of Fame. He has also been a major contributor to the development of guidelines for ADHD for primary care physicians by the American Academy of Pediatrics. Dr. Wolraich has been an author or coauthor on more than 150 journal articles and book chapters, including articles in the

New England Journal of Medicine, Pediatrics, and the Journal of the American Medical Association and chapters in 20 books. His research is funded by the National Institutes of Health, National Institute of Mental Health, Maternal and Child Health Research Program; National Institute on Disabilities and Rehabilitation Research; the Centers for Disease Control and Prevention; and the Office of Special Education and Rehabilitation. Currently, he is investigating the prevalence and long-term outcomes of ADHD in five school districts.

What state has the best services for adults with disabilities?

Best states for living with a disability.
Massachusetts. Massachusetts tops our index thanks in large part to the fact that it has the second-best livability score and the fourth-best health care score. ... .
Pennsylvania. ... .
Vermont. ... .
North Dakota. ... .
Maryland. ... .
West Virginia. ... .
Delaware. ... .
Washington..

What must be done to improve the quality of life for adults with disabilities?

5 Ways to Improve Quality of Life for Adults with IDD.
Having a comfortable and safe space to live..
Being employed and having daily activities..
Being involved in a community..
Having the opportunity to pursue education..
Being able to participate in recreational activities..

What is an example of a developmental disability?

A variety of conditions are classified as developmental disabilities. Among the most common are intellectual disability, autism spectrum disorder, Down syndrome, and cerebral palsy.

Can adults be special needs?

In many cases, adults with special needs have been diagnosed as such since childhood. For adults, the term “special needs” still acts as a general, catch-all phrase. Typically, however, an adult with a diagnosis of special needs has a long-term medical, intellectual, developmental or physical condition.

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